January 1997. I no longer remember the exact day. We had to be at Harper Hospital at 5:00 a.m. Another woman was checking in as well, and we "no, please, you first" responded to the call for next. An O.R. was scheduled for 12 hours to get the cancer in my head out. In the room would be my surgeon, a maxillofacial prosthedontist (and his spare parts, including a nose, maxillary bone, eye socket) a back-up plastic surgeon, many other professional medical people. My sister said she couldn't imagine what I was about to live through. I told her it would be her who lives through those hours. I'd be awakened in post-op after it was all over. I awoke in recovery to a guy in surgical gear calling my name. First thing I said was there are duckies on your cap. He said it's in a jar. Do you understand me? It's in a jar.
That January day was preceded by a year of trying to get a surgical referral, of learning at high speed through a traumatic situation how to get what I needed. How to hurdle the gatekeepers, trample the stoppers. That was the year of Flat Alice: anyone who tried to get in my way. The year of Beckie being at my side for each encounter, of her agreement to hold my consciousness until I was ready to take it back, of her getting me to a chair before I passed out when I saw the room of face parts in the MP's office as I hung up my coat. Of sitting in her car in the freezing cold after the MP told me he could replace my eye, but he couldn't make it blink, and Beckie slamming both hands onto the steering wheel, shouting "Damn it! Why can't he make it blink?" Of her being my ears, my guide, as well as continuing to be my Best Friend in the Whole Wide World.
Of children who became my spiritual advisors. Of my mother, unaware she was going to die of cancer soon, trying to find a way to bond with me that did not include disease.
A year of fools and misogynists and incompetent famous doctors and ridiculous healthcare network rules and paperwork. A year of miracle workers, angels on earth, and family, friends, laughter and terrible pain.
There would be another six years of surgeries to repair and replace. Six years of deepening and new friendship and acute self-discovery. Six years descending into personal financial crisis, and ascending to gratitude and awareness. Six years of losing my mother and friends to that awful disease.
Through it all there would always be that day in January when Dr. John Jacobs said it's in a jar.
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