Showing posts with label A Three Story Life. Show all posts
Showing posts with label A Three Story Life. Show all posts

Saturday, September 26, 2020

Keys to Nothing

I signed up for an editing workshop. We are to bring an excerpt for something we're working on. We are to state two techniques that we're good at. We are to submit questions for the person conducting the workshop.

I can't figure out where to upload that stuff either. I hate my homework being late still.

I'm contemplating the word irrelevant, in a social media realm of OK, boomer.

And contemplating the word control. I know in my brainpan somewhere that control is an illusion, that we control nothing, including what our brain decides to save into long term memory. My friend and I talk about this a lot. If we have no control, even of how our brain functions, then who or what does?

Irrelevant. We also discuss the difference between mind and brain. There's an analogy we came up with that both of us wrote down, but I don't remember it, and I'm not sure we are equipped to handle unanswerable questions. Examine how much life is left to you. Contemplate infinity. See how that works for you.

But the workshop signup started a chain of events that feels exciting.

I've been writing the story I will learn about editing for 15 years. It's memoir, so it's personal. Friends who have read the blog posts over the years love the stories about the wild ride caregiving is. There are about 60 million people in the USA who are caregiving right now, so maybe there's an interested audience, too.

So there's that to finish. Complete. Settle.

I bought a couch. One I picked out for myself. It's too much in the packed living room. What needs to go? My mother's secretary, which is a lovely piece of really large furniture. Her buffet that she bought for her trousseau in 1948? My great- and grandmother's desk that I had brought here when we sold her house? Most furnniture in the house is not mine, not pieces I chose. I don't like antiques. I keep them because? I keep them because of stories. I know the stories of all this furniture. Story provenance.

I told the friend who agreed to take the buffet that there wasn't anything in it. Then I dumped out the drawers. What's in it are all the things I did not want to throw away or hand out over the years.

It's a week later and most of the stuff is on the floor. Because in order to put it in one of the 2 remaining desks, I have to empty those, too.

Each day I choose something to put in the garbage bag sitting next to the pile on the floor. My father kept keys to things he no longer owned, including car keys. There are stories to those keys. But the stories are not mine. I threw them all out, inspired by Stu in The Stand (which I just reread) who–broke legged and dying in the wilderness–goes through his pockets and finds a keyring with keys that will open nothing. He throws them into the gulch. I did likewise.

Editing. The work and the psyche. Can't fill a vessel that's already full. This furniture offload is the equivalent of emptying the Junk Drawer of Life. Time to broom survival techniques that no longer serve, and have only been accumulating more stuff I can't use but don't want to look at too closely.

Stories are wonderful. Stories are how humans explain the universe to themselves. Edited stories are even more wonderful.

Time for my stories.


Thursday, April 9, 2020

Back to the Drawing Board

We may think we're not being physically impacted by the global pandemic, but we are mentally. I had a progress phone call with an author today, and I wished him a happy Friday. He thanked me in advance, and assured me he is starting by having a good Thursday.

I looked up how to clean an eraser today. I know how to clean an eraser. My brain just cannot access that information now.

Getting my brother his breakfast, I changed up the order of prep, and poured milk into his already poured orange juice glass instead of his cereal.

On hold for 40 minutes to handle a banking transaction yesterday, I forgot what I called to do by the time I got to the person who could help me.

We have been semi-isolated in our house for 15 years. A Three Story Life chronicles this journey. Our father died in 2017, and, while we have adjusted best able, it limits how often I leave the house. When I go on my version of abroad - grocery shopping, lunch with a friend, the rare and wonderful whole day outing - I have to have someone here to be with my brother.

For most of those years, I made money illustrating from the Artist Dungeon. I did not meet the people who hired me. I could work 24 hours a day in my pajamas as long as we had toilet paper and coffee.

That is a lot of experience that should hold me in place well.

It don't.

There is a difference between being homebound and being housebound. We are finding how prepared we are, our institutions are, our government is. When we are back to business as usual, I hope it isn't business as usual. Back to the drawing board.

Saturday, March 7, 2020

Happy Birthday to Me

This is the original art for A Three Story Life. We were in a townhouse then. Scott on the top floor, Dad in the middle, and me in the Artist's Dungeon. We had to move in 2014 because neither of the menfolk could make use of the stairs any more. Dad died in 2017 so the art (when I blog which is seldom) has a black band in the midfloor. I'm still in the Artist's Dungeon.






My friend Geri says the only thing good about birthdays after a certain age is the cake. She chooses a special one for herself each year. And now I do, too. It's all about the cake!












 
Celebrating my birthday and 10 years of A Three Story Life Writing.

Tuesday, December 11, 2018

Three:Two Story Life


Back the way it was. We're early in the 2nd year without Dad, and Scott still has this verbal tic. My response changes. I know, honey. It is the way it is. I do too. No response, depending on how the day's rolling. Scott is taking prozac now - I imagine he's depressed. The doctor agreed although I am the only reporting individual. She takes my word for it and writes a script. The carers report that he is more responsive (although I still don't know what to do with the one who coaches him to say praise Jesus!) I notice that Scott has stepped into life a bit more. (The fact that he can repeat praise Jesus! is one example.) This return to life shows up in making choices about his environment. He's picking up his dish from the table more often. He makes his bed. Moved his record albums into the living room from his bedroom. Decides when he's going to put on underwear instead of a diaper.

I have to be faster. He picks up his dish, but turns it upside down in the well I put the clean dishes. Then I need to rewash those. He makes his bed over wet sheets. Then the comforter is wet, too. Scott will toss underwear around until he finds the pair he wants to wear, and then I feel like he should be allowed to wear his choice, until the laundry basket is half full with wet underwear. I've had the plumber in 3 times in 60 days because Scott now wants to use toilet paper when he pees. A roll at a time. If he flushes, we're plugged. He doesn't always, so I have to be alert to what's up in the bathroom. Every time. Ten twenty times a day.

My handler with the State DHHS confirmed there's no way to timestamp this. Constant vigilance. No line item. I don't know why I brought it up with her. Looking for some affirmation that this is hard, unrewarding, depressing so that translates to a spreadsheet in the Capricorn corner of my brain.

My therapist used to instruct me to ignore stuff. Just la di da while stepping over scivvies tossed on the floor, toothpicks embedded in the carpet, twist ties strewn around the house. Back then it made some sense. Back the way it was meant arguing with Dad every week about allowing Scott his own life, his own agency, his own quirks. Now I am pushing back at that agency, a quandary for personal growth and peace.

All this stuff is just stuff. Whinging about the mundane. Because that's what it is. It is what it is.

Dad was a support on this three-legged stool of our stories. Scott spent all of his life with Dad in his story. That's a huge loss for him. Scott is finding his way in this new world order without the brain power and memory to find a way through. I question every hour if there is someone or anything that would be a comfort to him.

Dad was the person I could talk with, share his love of sports, my love of art. He was funny when he wasn't grouchy. Just like me. There are entire days when Scott and I have no direct communication; days when he's roaming the corridors of his inner life, and he does not hear me speak.

I'm mad and sorry most of the time. My freedom is curtailed - if I need to leave the house, I either have to take Scott with, or pay for support. I am not as agile, nimble, or interested as I was a year ago. Feeling isolated, I've isolated myself more. Quit the art commission. Stopped painting. Writing, creating, anything. I don't want to get dressed, shower, or rise from the bed to do neither.

I keep thinking this is the day it turns around. This is the day I reengage with life. This is the day my story will take up where it left off. And on that day I'm wrong again.

I am stuck in a groove of being unable to console myself because so many other people have it much harder than I do.

And I still can't cry.

Tuesday, May 22, 2018

A Three Story Life Farewell

We're burying Dad this week. He died in November, and the ashes have been at home until I passed the urn along to my big brother. In preparation for selling the house on Drummond Island, most of the offspring are on the island clearing out, tidying up. Since most are there along with Dad's ashes, my sister called the county to prepare the site. Feels rushed. The original plan was to coordinate this for later summer, early autumn.

It's always too soon, isn't it? Plans for this week changed abruptly Sunday when I heard the intent to bury Dad on Thursday, and I decided that I couldn't not be there. I don't want to wake up one morning down the road and feel bad. As if. Meanwhile, I have to prepare for making my brother share this long road to good-bye.

Our mother died in 1998. Scott won't get out of the car when we visit her grave. 20 years down the long road, he is mostly uncommunicative. I sometimes think he knows Dad has joined Mom, but there is no way to be sure. I told him Dad died. Dementia prevents him from keeping this knowledge. Some days he says it's over repeatedly. Some days he says back the way it was.

My closest friends think I'm crazy to make this trip at all, albeit with no other family in the car for 750 miles round. I have to pack mounds of incontinence supplies. Scott may or may not find closure, and even if he does, it's momentary. I protected him from the physicality of our parents leaving their bodies. That may not have been a good idea. I'm questioning everything. I pretend I can evaluate his needs. I cannot. I am wandering away from identifying my own needs.

All part of life's rich pageant. All grist for the writer's mill. In a life wherein I start writing again, this trip will be the closing scene. As it happens, the day Dad moves to his final place is the anniversary of us moving from A Three Story Life to A Two Story Life. May 26. It's also his brother and best friend's birthday. His brother died in 1998 also.

In that light on that stage, I imagine the items that might go in the grave with Dad's urn. Like ancient deceased expected to need stuff to negotiate the afterlife. I can't find my medicine bag (the collected donated items to help me kick cancer) that has the saxophone reed Dad gave me.

What I need to do is envision what I need to consign to earth. Leave whatever does not serve me on the Island when we get on the ferry. Use the mantra my lovely friend Carol taught me. All will be well.

I'm taking the golf ball.

Wish us peace.

Friday, February 9, 2018

Life Goes On Minus One

Last post my father died and my brother and I were working on how we continue in an altered reality. My brother has moments of auxiliary reality that freak me. I think Dad is communicating with him, or more accurately, Scott is communicating with his father. He is one moment an afterlife zen master and another the human he is now - enmeshed in Alzheimer's disease. I am consumed with paperwork in my own alternate reality that equates the new terror in the mailbox with scenes from The Raw Shark Texts. We live in a scifi novel that hasn't been written yet. And bloody hell, I'm not writing it.

Meanwhile. I illustrated a remarkable book last year. The author, who is a coach specializing in improving relationships and organizational behavior wrote a book that is extraordinary advice for executives and children.

Look at relationships in nature and understand who you are.

Love yourself and understand that's all you need to have a successful life.

The book is coming soon. The art preview is here.

Saturday, November 18, 2017

Three Story Life: End Game

So it's come to this. Me, a fifth of Jack Honey and a black hole. I snagged the Jack because I parked in the liquor store parking lot to take my brother to the doctor to pee in a plastic cup because we need to know if he still has an infection, after dropping in the mailbox thank you notes to medical personnel who helped, books in the library pick-up bin I haven't read, after starting at the house wondering if I'd remember how to start a pushbutton car.

I didn't remember. Nor did I remember how to shut it off. Three times.

Still not sure if my brother knows our father is dead.

One piece of business done today: I called DTE to change the auto payment from my father's account to mine because I started opening his mail, which feels intrusive, but the letter was dated the day Dad went into the hospital. Halloween. My mother's birthday, begob. Of course, the letter required a 2 day turnaround in their favor. DTE transferred me to Revenue Compliance. I need to send DTE a death certificate. Who pranks someone by switching their auto billing to their own wallet?

I instigated a breakout from Providence Park Hospital for my father. More on this later, but I haven't been 13 years of my life in his care and for his care to have him die in a hospital. The Attending thwarted for ego. Somewhere in my writing future this is the evildoer.

At the end, my siblings stepped up with love. I hope everyone in the house had a moment in the 24 hours Dad was home in bed where he wanted to be.

I was stroking Dad's hands. Keeping him, in his anxiety, from tearing at his oxygen tubing. When holding his hands away wasn't enough I lay on him, my face in his neck. He calmed. Minutes passed. I'm a pain in the ass he said. Well then, I learned from the best I said.

Scott had no moment. He was in the next room, witnessing the mayhem attached to a death: Dad yelling pee and drink, and when he figured we weren't fast enough, using his strobe flashlight to get attention.

I can't escape wondering what I could have done to make this easier on my brother. He lost his grandmother in 1987. She was his best buddy, finest champion, Yahtzee partner. My mother insisted on her being at their house. Did they handle his grief well?  It took our cousin from England to open my eyes in inquiring whether we'd dealt with Scott's loss. Scott then watched his mother at home in hospice care; objected to the police in his mother's bedroom when she died. And now this. The three most important people in his life died in his presence.

When everyone had left the house, Scott and I had dinner. I didn't know what to say to him, what he'd take in, what what. Then I held his face in my hands and I said, "We lost our Dad today. I am sorry for both of us. I want you to know you are loved, we are loved, and you are not alone. Do you understand? We will be okay."

And he said. Okay.

Tonight there's just me and Jack Honey and a black hole.

In the morning there's our life as it is now. Me looking at him for guidance, him looking at me.

Friday, September 8, 2017

Three Story Life Season 13

Been away from the blog so long that Linda Robinson Obituaries now occupies my place in google results.  Been away so long that links to all my articles are no longer available, so now I have to dig through my own files to find witty stuff I wrote about how I stop myself from writing by acquiring accoutrement to not write. Been away from writing so long it was necessary to get a new writing instrument.

Where was I? Ah, yes. Dad's in the hospital again. If I still thought it was important to have original art in all Three Story Life posts, there would be the 3sL standard with a gown drooping and 6 multicolored leads disappearing somewhere around the back of the hospital bed. The mandatory smiley face socks. The urinal so close to the water it's a classic finger wave good-bye for me - don't confuse those two.

Meanwhile back at the now 1-story 3sL HQ, still cracked was the cracked step that was noted on the Spring Walkabout repair list in...the spring. Visiting my father on Weds., my phone rang. It was the contractor letting me know the cement would be fixed tomorrow. I hung up. Cracked up. What's funny? Dad asked. I told him. He said, oh that's not a problem. I can write this script now. He's not going to respond well when I get out of the car after retrieving him, say OK, here's the not a problem, and vault myself and Scott into the house, leaving him to contemplate the not a problem part of the world where all the problems belong to someone else to solve. In this case, it'll probably be the South Lyon Fire Department Egress Team. Again.

Sunday, October 16, 2016

Welcome to Medicare in the Three Story Life

First doctor visit with Medicare for me. My brother and I went together. He's been on Medicare for years. Our Medicare reports came same day. There is a $47 charge for both of us for 15 minutes worth of depression screening. My brother has Alzheimer's disease, is nonresponsive, so screening did not happen. I am completely responsive, and I didn't get 15 mins. screening either. Neither one of us is on depression medication, so screening shouldn't be a proforma billing opportunity anyway.

Except - yeah - who reads a Medicare billing report?

Medical now bills like legal, in 15 min. increments? $188/hour for depression? Please don't tell my therapist this.

I went into the office, copies were made. Explanations were given. We didn't do this here. It's the system. You'll have to discuss this with Medicare. The biller is out to lunch. The biller will call you. When I hadn't gotten a call by Friday, I went in again.

Copies made right away. Notes taken. Date of birth(s), phone number. Explanations commenced. The biller is out to lunch. This invoice comes from headquarters. We can't do anything about this here. You'll have to take it up with Medicare, with HQ. Different person, same script.

It's the system.

"So your system is AI, is it?

"Sorry?"

"No human entered this code from here."

"Well, not really."

"The system did it."

Nod. "We can't fix it here."

"Because the system."

Nod. "Can only be fixed after the fact. And not here."

Blank stare.

Face transforms to sympathetic aspect. Shrug. "It happens."

"Yes, to millions of us."

"Well. Not here."

Tuesday, October 28, 2014

A Three Story Life: CSI Family

Yesterday, back from the grocery store and setting dinner on the table, I noticed the faucet (which the plumber just affixed pointing to the bigger sink section, because no, it was not built to swivel, and my brother had uncoupled it from the countertop forcing the swivel) was twisted over the other bowl. Who moved this? I asked. My father said, I didn't. And Scott didn't. I turned around from the sink to look at him expecting to have the phantom culprit revealed. I thought of my mother who, when no one in the house admitted to doing something, would say, then it's the ghost again. Nothing. Dad stared, silent. I had to ask, then who did? The cleaning people. During dinner I thought out loud - I don't remember putting ketchup away. I bought ketchup. Maybe it's still in the car, Dad said. I waited for more information. What is this - a police procedural? Psychic revelation? He just kept staring at me. I had to ask, why do you say that? He said because the car door's still open. ! I never finished taking the groceries in. When was he going to tell me? Tomorrow? When snow piled up on the passenger seat? And I wonder why I think I'm going crazy. It's a remake of Gaslight.

Tuesday, September 30, 2014

Three Story Life 2014

Another Caregiver Ninja week featuring ambulance, hospital stay, care coordination and a diminishing sense of who and where I am. Seems that each crisis is easier in the coordination of, and harder in the emotional aspect. That isn't what I mean: it feels like I'm untethered from Self and drifting farther away from help and safety. Think Gravity with better underwear. We had that talk about DNR with my father and maybe we're closer to discovering what he really thinks. Specifics were discussed. Yes, 911; no vasopressor and intubation. Disturbing to find out that regardless of what is on file at the destination hospital, staff will go through the steps one by one. My own end of life preferences get in the way. Dad takes a myriad of meds, has had surgeries and procedures and dozens of machine tests. My journey is different. Three stories of end of life emotions, tactics and the overwhelming experience of it all. I told Dad his job for the future is to appreciate. Each day, the color changes, good meals, a fine night's sleep, calming memories, warm socks, hot coffee, a returned phone call. I'm trying to take my own advice.

Wednesday, August 13, 2014

Baby Brother Buddha

My brother and I were out today for breakfast and errands. We stopped at the farm plot to cut some flowers. Scott was hugging the blooms on the way home - unknown if it was because he was appreciating, or because he was saving them from my scary (to him) driving. The world's too big for him now. Gerry Rafferty's "Baker Street" came on the radio. At the line "forget about everything" Scott repeated it. My heart chilled. But he was hugging flowers, and when I smiled at him he smiled back.

Thursday, February 21, 2013

A Three Story Life: Medical Advocate

Nice doesn't get a damn thing done. Civil is good. My mantra these days is "I don't have to get mad, I just have to get what I need done." As caregivers, especially as live-in caregivers, we know the level of need. We know it like we know how high our blood pressure is, but we do something about other people before we do anything about us. That's for another post. Dad's blood pressure is really high. He has a medication in the cupboard that was prescribed by his VA doctor. He got confused and stopped taking it in December. December. His BP is dangerously spiky. He calls in his BP to their "blood pressure monitoring" answering machine. and Nurse Kelly will call and ask "why is your blood pressure so high?" to which I want to reply, well, never mind. Nurse Kelly told him to hold off taking the medication prescribed by his doctor until the results of his vascular tests are in. Ridiculous, but he waited. The results are in. But my father misunderstands what he's told, too. I told him to call the doctor. She's not in. Leave a message. A message just goes into a message center. Yes, that's where messages go. Leave a message for the doctor. He called Nurse Kelly. I used his phone to call VA Doctor. Message person asked if he's reporting to that monitoring bullshit. Yes. They will call, message person said. No, I said, I want to talk with VA Doctor. Okay. I'll leave a message for her team. No, a message for VA Doctor to call. No response. Please repeat the message as you entered it, back to me, I said. Think dog/bone. Think tick/ankle. Think clearly about what you need, and then insist the entity at the other end of an exchange repeats back to you what you want. Be clear. Be specific. Use short sentences. One word responses. If you need to write it down first, do so. And repeat what you need until the other party agrees you need it. Every office you call has a Flat Alice who is the front person supposed to move you away ASAP. It's your decision whether a doctor needs to be bothered, not the gatekeeper. No one bars the door for me any more in medical situations. Use please the first time, but not onward as the conversation ages. Say thank you, only after you are sure you were understood. Nice doesn't get a damn thing done. Civil insistence does.

Wednesday, January 30, 2013

A Three Story Life Separate

I'm sitting here in the dungeon wondering if the pain in my chest is physical. If I don't finish this post, you'll know it was. Just had another quaky conversation with our father about Scott going to the grocery store. We disagree on whether Scott is comfortable going. My brother is Dad's legs. He claims it helps Scott to fetch things - keeps him alert. Perhaps. Dad offered as evidence that Scott hurries to carry out tasks assigned. My brother has speed issues. His awareness of where his body ends, and how fast it's traveling, is compromised by Alzheimer's. Scott said no to the store the other day. That's major involvement for him, and I'd like for his choices to be honored. Later I heard Dad tell Scott to get his coat on: they were going to the store. Tried to talk about it today because Dad's sitting upstairs waiting for Scott to come home from an outing and he'll take him to the store. I tried hard to be reasonable, thoughtful and respectful. I said I would go to the store. Dad said he himself wanted to go out. Fine, I said, I'll pick up most of it and you can go mosey later. Dodging and weaving around the issue. Dad was lulled into confessing that he is still focused on discipline. This is our primary difficulty in the house. While our father may mildly grasp the realities of Alzheimer's disease, he deeply believes that Scott's behaviors can, and should be, controlled. Curbed. That's the word he used. And my heart started aching again. I have no more strength for this situation. So discussions will commence with the rest of the family about alternatives. I cannot help either of them, and I cannot help myself from here. 

Monday, January 14, 2013

The Gift of Self Esteem

I don't know how it got here, but I know the day it did. I tweeted its arrival. An early and unexpected Christmas gift from the universe on December 22, 2012. For the last half of 2012, I was fascinated by a call for entries from an Eastern Michigan University senior fine arts major named Felicity Baker. She is double minoring in psychology with women and gender studies. The exhibition, during March (Women's History Month) will be head and shoulders renderings of what contributors understand about the looking-glass self. Presented by Charles Cooley in 1902, this theory purports, as Baker quotes, "I am not what I think I am and I am not what you think I am; I am what I think you think I am." Twisty, huh? It took a handful of weeks to even understand the concept. I've had several ideas of art to submit, but I am thinking in three-dimensional art, rather than flat art asked for submission. And I am thinking about whether this theory is true. For me. In the long years of the past. Today. The art I imagined is a discarded frame hanging in my workroom. Around the edges I would paint "I have a framework. It is constant and divine."  True. All the wiggly bits and electricity and chemical compositions that make a human are there at the beginning. Centered in the frame on fishing line is a light. Small, bright. This is my essence. Powerful, as significant in every way as anything else in the cosmos. As mighty, as miniscule. True. In front of this incredible light would be transparent panels representing what has, and is, obscuring that light. 1st layer: painted with the parent brush. 2nd layer: painted with the peer brush. 3rd layer: drawn with the teacher pencils. And so on. Bosses, coworkers, lovers, enemies, circumstances. True. And understanding emerged. We have no way of knowing what others think of us. But we make it up. We absorb what our culture feels about us. We suffer for it. We do it to ourselves. For the last several months, I've been removing the painted layers from my mental work of art. When these obscuring layers are abandoned by me - because I am the person who keeps them installed and effective - when I remove the layers, what remains is my light. Small, powerful, steady, calm and bright. So bright. And on December 22, 2012, when I subconsciously reached for the veil, it wasn't there. None of them were. Self esteem. "I am what I know I am."

Monday, December 10, 2012

A Three Story Life: Another Christmas

Holiday season. Coming off a cold, I got slammed anew by a nondefined malady that I choose to call passing my evil twin. I was asleep for 2 days. My father left a note on the dining room table the second day that he was at the Hyundai dealership getting his whoozit what-iffed, and Scott was asleep upstairs. I found the note on the third day. I assume Scott woke up, because he was there at dinner tonight. The tree's not up, nor do I personally employ the Christmas elf that has put the tree up for the last 7 Christmases. That after having shopped for, and bought the artificial tree. I have not shopped once this year. I think I may not. I hate shopping. I don't even like to pick up takeout. I thought the smell of evergreen was missing, so I bought some greens, and they are now dropping needles on the valet. I'll throw them out soon. They do not smell like evergreen. After doing dishes for the 3rd time today, I decided what I want for Christmas. I want the whole house cleaned top to bottom. I told Dad. Nothing will happen though, until I acquire a cleaning crew, organize a day when we can be all out of the house, get us all out of the house, and pay the crew. Be a problem-solver, Linda, my friend says. Fine. Do the research, find the crew, get the schedule organized. Put up the tree. Get, make or steal gifts for my own giving and my father and brother to give. Wrap same. Seems I've been sick at Christmas time more than once in recent years. Maybe the holiday hooha makes me sick. This year I'll promise myself again that next year I'll be somewhere with a beautiful fire, a hot drink, a few good books and only squirrels and deer outdoors for company, and all of us grateful, grateful, grateful.

Saturday, November 17, 2012

A Three Story Life: Backstory

We move about our lives in the history of our experience, like the classic suit in the closet we don't think about, no longer wear, but have not abandoned. Knowledge we can get if we're intellectually curious. We can knead awareness like physic dough, but the ingredients that made us are still there. Change can help us grow; the yeast of chaos delivered to our cupboard. Two conversations in an hour yesterday made me try to put that old classic suit on again. My father has 86 years of history and experience. I have no idea, and never will, what his life means to him, beyond what he shares in anecdotes, and what I can discern from reactions to events. He has no idea what my experience has made of me either. My brother may still be absorbing everyday events, but Alzheimer's disease has changed the interactions for the three of us. Dad wants it the way it was before. Scott wants the relationship to change. I need to adapt to the now with agility. Three individuals. One living with Alzheimer's, one living in the past, and me trying to make it all work harmoniously. Does how we came to this point matter? What defines who we are? The first conversation yesterday started early with Dad showing me the long sheet of details about the antidepressant Scott is on - the side effects that we're seeing in Scott. That's easy. We need a change in prescription. But Dad relayed stories about Scott's behavior that told me he's still trying to control his son. He picked up the sheet on the medication to read it because he wants a change to make Scott follow his orders. Scott, for the first time, is shaking off the control. Dad doesn't like it. What's my role? I told Dad for the thousandth time that we can only offer Scott safety and joy. He's done being trained. Get the medication changed, hope for a better outcome, and let the rest go. My backstory doesn't help me at all now. I hated my parents complete domination. I got out from under it, fought for dominion over my own experience, succeeded some, lost some. And here I am back in it. I can handle my own parental stuff, but Scott never did get away. Am I cheering his tiny steps for independence as a loving sister, or as a champion of freedom for myself? The second conversation yesterday was with a dear friend about affirmative action. Chaos delivered the newspaper headline to our talk, and my companion thinks it is time to abandon preferential legislation. I understand that constitutionally the argument is valid. My backstory is woman experience, starting with being the daughter of a sexually abused daughter; earning less for decades, counseling to get a grip, fighting to gain the ground I did, trying to help sisters up. I have strong feelings and history on this subject. It's my old classic suit. And I got angry yesterday, and suppressed it until later. The anger was a reasonable reaction, but now I'm questioning my feelings again. I'm mighty confused. Does it matter that my father wants to control his child, my brother? I don't know. Can I contribute anything healing and constructive? Why did a disagreement about affirmative action affect me so much? I don't know that either. I have the child story, sibling story, and adult senior woman story. Which serves me best? What helps my loved ones? And when the hell will I get rid of that old classic suit that used to fit but no longer does?

Thursday, November 15, 2012

A Three Story Life: Navigation

Yesterday Dad yelled down the stairs. "I'm going out to scrape my car." Okay, I thought. What's that about? He was leaving for the dentist in half an hour. Practicing observe and let it go, I took note and moved on to other tasks. A thought drifted into focus. Maybe this reportage is about bearings. I fell a couple weeks ago. Afterward my left brain got caught up in analyzing what happened. It was a new surprising event and I mentally gnawed on it to get its flavor. I lost my bearings. Spinning out, my father calls it. What Dad was doing when he gave me his location was using me like a star in a sea of change. At first it seemed I was a sextant, but that's a tool - there are still x and y points to locate in order to use a tool for navigation. We have physical locomotion needs: how far away is the ground? How close that step? And we have psychological placement needs. Establishing behaviors that define our physiologic borders. Scott has lost sense of where his body ends and the rest of the world starts. We don't know how he feels about this. Dad knows how it feels, and although he cannot communicate it any more than Scott can, he sets his internal sextant to coordinate the points he can recognize. If I know where he is, then he feels less at sea. I become either a point on the horizon or the north star. It's an awesome role, and I will respect the assignment with humility and reverence, and think of it as an opportunity for growth. And this awareness is a marker to watch for this in other seniors, and hopefully, to remember to use it myself.

Monday, May 7, 2012

A Three Story Life-The Wayback Machine

The Wayback Machine was a device used by Mr. Peabody and his boy Sherman to visit history. Peabody's Improbable History cartoons were a feature of the Rocky and Bullwinkle show, a genius Jay Ward enterprise. Peabody, here, Mr. Peabody said to start, and we would then happily journey back in time. In our house, The Wayback Machine begins with that's like... or I remember. If Dad says I remember, there will be a tenuous connection to what we are talking about in real time. If it's that's like, the anecdote will have little or nothing to do with now. Many conversations include these two episodic references. I think older people talk this way because long-term memory is most readily accessible. Humans like to have self-relatedness. We all like to talk about ourselves. But the non sequitur recurrence makes it head spinning to keep up during a crisis that needs attention. In the midst of household problem solving, it's downright hard. It confuses me, it confuses people from outside our house who are participating in what's being discussed. Maybe it's common to try to explain what we did 45 years ago that may or may not have led us to where we are now. But information revealed in this way doesn't clarify anything for the listeners-it makes getting through a sticky wicket that much gummier. Today I said a dozen times, let's focus on the here and now. We moved into the 80s fairly quickly, but never did get out of that troublesome decade altogether. Do we all do that? Dad tells anecdotes to me as though I was not there when the story unfolded. This behavior is particularly perplexing because in every other way his cognitive function is fine. He just won't switch The Wayback Machine off, especially if we're confronting a situation that requires present tense attention and a rapid solution. I think those of us who are stuck in the past tend to stay stuck. Everything is a reflection, living is not done in the present. Problem solving is solving problems in the past. Alternative outcomes get reviewed repeatedly in private, until the past is a wheel in a cage. There must be some brain function that allows a successful conclusion from the past to stand in for what's going on now. I'm over analyzing this. I need more present and accounted for behavior in dealing with situations, because our lives right now contain serial situations. All I know truly is it is not possible to count your blessings when the wheel of self-analytics is going full speed, and I have great sympathy for my father. It has to be exhausting not to have blessings in the now to count.

Tuesday, April 24, 2012

A Three Story Life - Fishbowl

I like privacy. It's been a designed part of my life, by arrangement and preference since I was 16. Fortune favored me by allowing the circumstances to keep my life quiet and personal. It hasn't been quiet or personal since living the three-story life. My stuff is out in the public domain, so much so, that, before I have my coat off from whatever undertaking, I'm asked about outcome. It's a small thing; a thing I'm a little ashamed of having trouble adjusting to, but taken in a bundle, every day, every step out the door and walk back in, it's impacting my body, my mood, my well-being. Today it's my glasses. I have a pair several months old that have been an expensive hassle. I don't remember wanting a coating (and I'm not even sure now if it's glare or scratch) but the damn stuff warps in heat. The lenses have been replaced three times already, striated at the hands of the people adjusting them who plunged them into the heated beads that allow bending the frame, thus warping my lenses. I've got striations in the left lens now, without knowing what heat did it. I don't use hot water, I don't dry my hair with my glasses on; mysterious appearance. I went to the eyeglass place to ask for a solution. Blah, blah, blah, I have no interest in talking about it because it's the usual damned if you do/don't of business transactions these days, but since I told Dad where I was going, before the door was shut, he wanted to know how much of a fight it was. I don't know why he wants to know this stuff. Is he interested in how my life is? Maybe. Does he enjoy my confrontation scenarios? Maybe. He's learned just enough about my reluctance to share everything to know how to ask a question to which I cannot reply only fine. So, he's learned that. Why can't I learn to just let it all go? I moved into the basement when I was 16 to get away from all the questions my little sisters peppered me with, and now I am already in the basement. Reminds me of the old performance review snippets being email forwarded years ago. "This employee has reached performance rock bottom, and is starting to dig."