Showing posts with label Alzheimer's. Show all posts
Showing posts with label Alzheimer's. Show all posts

Tuesday, May 22, 2018

A Three Story Life Farewell

We're burying Dad this week. He died in November, and the ashes have been at home until I passed the urn along to my big brother. In preparation for selling the house on Drummond Island, most of the offspring are on the island clearing out, tidying up. Since most are there along with Dad's ashes, my sister called the county to prepare the site. Feels rushed. The original plan was to coordinate this for later summer, early autumn.

It's always too soon, isn't it? Plans for this week changed abruptly Sunday when I heard the intent to bury Dad on Thursday, and I decided that I couldn't not be there. I don't want to wake up one morning down the road and feel bad. As if. Meanwhile, I have to prepare for making my brother share this long road to good-bye.

Our mother died in 1998. Scott won't get out of the car when we visit her grave. 20 years down the long road, he is mostly uncommunicative. I sometimes think he knows Dad has joined Mom, but there is no way to be sure. I told him Dad died. Dementia prevents him from keeping this knowledge. Some days he says it's over repeatedly. Some days he says back the way it was.

My closest friends think I'm crazy to make this trip at all, albeit with no other family in the car for 750 miles round. I have to pack mounds of incontinence supplies. Scott may or may not find closure, and even if he does, it's momentary. I protected him from the physicality of our parents leaving their bodies. That may not have been a good idea. I'm questioning everything. I pretend I can evaluate his needs. I cannot. I am wandering away from identifying my own needs.

All part of life's rich pageant. All grist for the writer's mill. In a life wherein I start writing again, this trip will be the closing scene. As it happens, the day Dad moves to his final place is the anniversary of us moving from A Three Story Life to A Two Story Life. May 26. It's also his brother and best friend's birthday. His brother died in 1998 also.

In that light on that stage, I imagine the items that might go in the grave with Dad's urn. Like ancient deceased expected to need stuff to negotiate the afterlife. I can't find my medicine bag (the collected donated items to help me kick cancer) that has the saxophone reed Dad gave me.

What I need to do is envision what I need to consign to earth. Leave whatever does not serve me on the Island when we get on the ferry. Use the mantra my lovely friend Carol taught me. All will be well.

I'm taking the golf ball.

Wish us peace.

Wednesday, August 13, 2014

Baby Brother Buddha

My brother and I were out today for breakfast and errands. We stopped at the farm plot to cut some flowers. Scott was hugging the blooms on the way home - unknown if it was because he was appreciating, or because he was saving them from my scary (to him) driving. The world's too big for him now. Gerry Rafferty's "Baker Street" came on the radio. At the line "forget about everything" Scott repeated it. My heart chilled. But he was hugging flowers, and when I smiled at him he smiled back.

Thursday, November 15, 2012

A Three Story Life: Navigation

Yesterday Dad yelled down the stairs. "I'm going out to scrape my car." Okay, I thought. What's that about? He was leaving for the dentist in half an hour. Practicing observe and let it go, I took note and moved on to other tasks. A thought drifted into focus. Maybe this reportage is about bearings. I fell a couple weeks ago. Afterward my left brain got caught up in analyzing what happened. It was a new surprising event and I mentally gnawed on it to get its flavor. I lost my bearings. Spinning out, my father calls it. What Dad was doing when he gave me his location was using me like a star in a sea of change. At first it seemed I was a sextant, but that's a tool - there are still x and y points to locate in order to use a tool for navigation. We have physical locomotion needs: how far away is the ground? How close that step? And we have psychological placement needs. Establishing behaviors that define our physiologic borders. Scott has lost sense of where his body ends and the rest of the world starts. We don't know how he feels about this. Dad knows how it feels, and although he cannot communicate it any more than Scott can, he sets his internal sextant to coordinate the points he can recognize. If I know where he is, then he feels less at sea. I become either a point on the horizon or the north star. It's an awesome role, and I will respect the assignment with humility and reverence, and think of it as an opportunity for growth. And this awareness is a marker to watch for this in other seniors, and hopefully, to remember to use it myself.