Tuesday, April 19, 2022
Chantepleure Reincarnated
Saturday, November 14, 2020
Created for Those Who Suffer
The post title is from Tad Mosel's play All The Way Home and continues "especially those who cannot endure."Stacy was 28. Stacy was going to die. Soon.
When Stacy was diagnosed I worked at the American Cancer Society.
I was going through my 7th surgery about the cancer I was fighting. I had a whole bunch of useless fucking statistics to hoist.
What I knew once more: I was going to live. Stacy was going to die.
I had no idea how to be there for her. Or my sister. How to be real. How to cope with the bizarreness of who lives and who dies.
My sister was suffering. Stacy was not. There is a difference between pain and suffering that the Buddhists can teach us and I am still learning. But Stacy already knew that and my sister soon would.
My sister asked her what can I do? Stacy told her.
Help me tell my family I will die. Help me arrange my funeral the way I want it. The family were in shock and denial. Stacy and my sister melded their love with pragmatism.
My sister spoke to her parents. This is what I know. This is what Stacy wants. I will do her make-up for her casket. This is the outfit she wants to wear.
Stacy. 28 years old. Dying. The strongest person I had met until then. Until I knew my sister.
I wanted to honor Stacy's journey.
I'm an artist. I wanted to send her a card that expressed her strength. I looked and shopped.
And found nothing.
Get well. God will save you. Crosses, which are crap art. No. No.
I rescued Barbie dolls and used them to reimagine a world in which women mattered, but antithetically, fell in love with some high end fashion dolls.
I repurposed those dolls.
I spent one entire day photographing the dolls I had, those I knew enough about to resell at a profit, and those I would keep and make outfits for. Out of clothes I'd owned and loved. To express empathy for the journey.
This is the card I sent to Stacy. AND I WILL REMEMBER YOUR STRENGTH.
I will.
Another card was inspired by Barbara* a woman I knew and, who in presentation I attended told her story about the doctor telling her she had 3 months to live. When she asked why would you tell me that, he said because I won't offer false hope.
She found another doctor in Texas who gave her enough hope to live to see her last Christmas with her children.
There is an intense focus in specificity, a terminal diagnosis that cannot be understood and won't be felt until you or someone you love has that in their kit. It's a sense of your place in the universe. Small yet mighty.
The card art has Barbies. Collectible fashion dolls. Irrevalent in this context. But I love them, certainly the ones I kept. I didn't have dolls as a child, so I see the yearning in collecting as an adult.
The day I did the photography in the local park, I was frightened by a guy who popped out of the bushes. We stared at each other. He held up a cardboard image of Flat Stanley, the current GPS around the world photography image. Share an image.
Flat Stanley, I said.
Thank God you know that, he said. My niece made me do this.
That day I also crashed a mountain biker barrreling through my shoot. He was laughing too hard to stay astride.
I have these beautiful words I have honored all these years.
I made these images. Dressed this shoot. But it's iffy now. Doll collectors. Pffft.
Here I am. The writer. The artist. I want this out in the world. I think it matters.
I also photographed my great-gramdnother's and grandmother's teacups. And my grandmothers's and mother's gloves. And their pearls. And their handkerchiefs. Three generations.
Which art matches the words?
I'm going to offer both. The art is subjective.
The words are what matters most.
Addendum: Stacy was buried in the pink suit she told my sister she wanted to be buried in and the suit my sister told her parents to dress her in.
Saturday, September 26, 2020
Keys to Nothing
I signed up for an editing workshop. We are to bring an excerpt for something we're working on. We are to state two techniques that we're good at. We are to submit questions for the person conducting the workshop.
I can't figure out where to upload that stuff either. I hate my homework being late still.
I'm contemplating the word irrelevant, in a social media realm of OK, boomer.
And contemplating the word control. I know in my brainpan somewhere that control is an illusion, that we control nothing, including what our brain decides to save into long term memory. My friend and I talk about this a lot. If we have no control, even of how our brain functions, then who or what does?
Irrelevant. We also discuss the difference between mind and brain. There's an analogy we came up with that both of us wrote down, but I don't remember it, and I'm not sure we are equipped to handle unanswerable questions. Examine how much life is left to you. Contemplate infinity. See how that works for you.
But the workshop signup started a chain of events that feels exciting.
I've been writing the story I will learn about editing for 15 years. It's memoir, so it's personal. Friends who have read the blog posts over the years love the stories about the wild ride caregiving is. There are about 60 million people in the USA who are caregiving right now, so maybe there's an interested audience, too.
So there's that to finish. Complete. Settle.
I bought a couch. One I picked out for myself. It's too much in the packed living room. What needs to go? My mother's secretary, which is a lovely piece of really large furniture. Her buffet that she bought for her trousseau in 1948? My great- and grandmother's desk that I had brought here when we sold her house? Most furnniture in the house is not mine, not pieces I chose. I don't like antiques. I keep them because? I keep them because of stories. I know the stories of all this furniture. Story provenance.
I told the friend who agreed to take the buffet that there wasn't anything in it. Then I dumped out the drawers. What's in it are all the things I did not want to throw away or hand out over the years.
It's a week later and most of the stuff is on the floor. Because in order to put it in one of the 2 remaining desks, I have to empty those, too.
Each day I choose something to put in the garbage bag sitting next to the pile on the floor. My father kept keys to things he no longer owned, including car keys. There are stories to those keys. But the stories are not mine. I threw them all out, inspired by Stu in The Stand (which I just reread) who–broke legged and dying in the wilderness–goes through his pockets and finds a keyring with keys that will open nothing. He throws them into the gulch. I did likewise.
Editing. The work and the psyche. Can't fill a vessel that's already full. This furniture offload is the equivalent of emptying the Junk Drawer of Life. Time to broom survival techniques that no longer serve, and have only been accumulating more stuff I can't use but don't want to look at too closely.
Stories are wonderful. Stories are how humans explain the universe to themselves. Edited stories are even more wonderful.
Time for my stories.
Thursday, May 28, 2020
Lyydia
Thursday, April 9, 2020
Back to the Drawing Board
I looked up how to clean an eraser today. I know how to clean an eraser. My brain just cannot access that information now.
Getting my brother his breakfast, I changed up the order of prep, and poured milk into his already poured orange juice glass instead of his cereal.
On hold for 40 minutes to handle a banking transaction yesterday, I forgot what I called to do by the time I got to the person who could help me.
We have been semi-isolated in our house for 15 years. A Three Story Life chronicles this journey. Our father died in 2017, and, while we have adjusted best able, it limits how often I leave the house. When I go on my version of abroad - grocery shopping, lunch with a friend, the rare and wonderful whole day outing - I have to have someone here to be with my brother.
For most of those years, I made money illustrating from the Artist Dungeon. I did not meet the people who hired me. I could work 24 hours a day in my pajamas as long as we had toilet paper and coffee.
That is a lot of experience that should hold me in place well.
It don't.
There is a difference between being homebound and being housebound. We are finding how prepared we are, our institutions are, our government is. When we are back to business as usual, I hope it isn't business as usual. Back to the drawing board.
Saturday, March 7, 2020
Happy Birthday to Me
Celebrating my birthday and 10 years of A Three Story Life Writing.
Sunday, November 17, 2019
Thank You for Waiting
My process has been to create a cover first, and in some years not write one word. This year I made 4 covers, so I expect to not write 4 times as many words.
The ideas were intriguing. Still are. This year I chose a subject that has been in my brainpan for decades.
Waiting.
30 years ago, the title was Women Who Wait. Waiting is an activity we do well. We wait for the perfect partner, wait for promotions, raises. Wait to see the light, wait for dark. Wait for bruises to heal, wait for new ones. Wait for our loved ones to come home from war. Wait to heal, wait to die. Wait for the other shoe to drop. Wait on hold.
Noticing the messaging while on hold this month. Caregivers spend hours on hold. Doctors, pharmacies, health agencies, state handlers, county wranglers. In my case, when I get mad enough, wait for my legislators.
Doctor's office: 17 minutes on hold. Sales pitches for new mammogram technology, heart screening check (only $75!) and the ubiquitous messaging that you can do whatever you think you need to wait on hold to do on our website.
Pharmacy: 22 minutes on hold. Sales pitch op.
Kitchen cabinet place: "Thank you for continuing to hold. We are assisting other excited home remodelers." Sheesh.
The doctor's office is just down the street. I've checked the we are busy assisting other callers more than once. Drive down to the office - no one is on the phone.
Thank you for continuing to hold. We appreciate your patience.
Thursday, September 12, 2019
The Patriot 2019
The day after.
A woman on a panel recently said we are obsessed with punishment. With revenge, even if it is practiced without heed to justice. I forget if she meant Americans or humanity.
We woke on the next morning to a global war on terrorism. To more slaughter and jangling patriotism and children and their mothers around the world barely surviving in an apocalyptic aftermath of our righteous battle.
People who spoke to the idea that violence begets violence lost their jobs, were vilified and careers destroyed.
18 years later. We are at war on 17 fronts around the world. We are not safer than we were in 2000. We are denying USA asylum to peoples who are brown, and we have isolated our country from helping refugees around the world: refugees who are displaced because of retaliatory hatred.
We have an administration that no American could have foreseen. Except the people who saw it coming, who spoke about it, and who had their careers destroyed for speaking the truth to power.
Monday, July 15, 2019
Cheryl Ann Mull Moody
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| Purple Rose for Our Theatre Queen |
Sunday, March 31, 2019
Three Story Life - Toilet Paper Follies
A Lecture Isn't What I Need from a Plumber
You're using too much toilet paper. <duh>
Don't you have an auger? <show auger>
That's not an auger. <why does it say auger on the tag, then, hm?>
You need this size auger. <hefts his auger>
<Ooo that's a big one. Here's your check. Bye.>
1. Hide the Toilet Paper
This worked for the first handful of times. Scott has Alzheimer's disease, but he still can see. He knows where the toilet paper is hidden.
2. Hide the Toilet Paper Higher
Scott is short, so I thought I could put it on the top shelf in the back. Nope. So I hid it better.
3. Hide the 12-Pack
Unable to find the new hiding spot, he opened the new 12-roll package on the floor and used that.
4. Hide the Toilet Paper in Different Places
I figured out that the sound of his belt buckle dragging on the floor means the search for where the toilet paper is hidden is underway. With his drawers dragging, and a bum not in safe travel mode yet.
5. Hide the Toilet Paper in the Same Place. Listen for the Belt Buckle
This only works if I'm paying strict attention from the Artist's Dungeon directly below the bathroom. This method also requires that I remember where I hid the toilet paper the last time.
6. Tell the Carers Where The Toilet Paper Is
If I don't remember to reveal the location, there's a text message to be sent. If I don't remember that, I get a text. Where's the TP?
Thursday, March 21, 2019
RJ Spangler Trio and Tbone Paxton Mardi Gras Jazz Music 2019
This concert appearance is always a welcome musical experience that also delivers an education. Before performing Canjun Country, Tbone shared a history of New Orleans and its music. An organic convergence of French Acadians who were expelled from Canada in the 18th century, with West African, Congolese musicology. Congo Square was a gathering place for drumming and music in New Orleans (restricted and banned except on Sundays until the 1920s.)
We know Hank Williams (Cajun Baby, Jambalaya) and I'm going to introduce you to D. L. Menard's The Back Door, too. D.L. said he was asked to write about the Front Door, but he's got trouble with the hinges so he hasn't gotten around to it. Not quite jazz, but Acadiana, and New Orleans flavored for sure.
Hoagie Carmichael's New Orleans was our next treat. Quoting the link comments section here: "This is from the 1956 album "Hoagy Sings Carmichael with The Pacific Jazzmen" (Art Pepper on alto sax, Harry "Sweets" Edison, Don Fagerquist, Jimmy Zito, Irv Cottler, Nick Fatool, Al Hendrickson and Jimmy Rowles), arranged and conducted by Johnny Mandel.
RJ told us that Bix Beiderbecke played with Hoagy Carmichael. Before 1930, Bix was with the Jean Goldkette Orchestra. Goldkette was the music director of the DAC for over 20 years, and also co-owner of the Graystone Ballroom. Beiderbecke was born in Davenport, Iowa, and undoubtedly heard jazz music wafting off the Mississippi River. Goldkette married Lee McQuillen, a newspaperwoman, and I can't find a thing about her. What newspaper? Inquiring minds want to know.
Iko Iko is a story about Mardi Gras Angels, African-American/Native American influencers, performers who used to fight and now dance. TJ mentioned Rumble, a PBS documentary about Native American contributions to music.And if you want to sing some more, Jock-a-mo-fee-na-ney. Next on the list was Eh La Bas Danny Barker, composer. This is one of our favorite audience participation tunes.
Do You Know What It Means to Miss New Orleans? You won't want to miss this video of Louis Armstrong and Billie Holiday. If you don't check any of the links before this one, do listen here. Don't know who the blonde is, but looks enough like my Mom to make this song even more bittersweet.
My li'l bro and I listening. I'm missing New Orleans in this photo. We both still miss both our folks, who shared music with us all their lives.
RJ and Tbone speak often about the responsibiliy - and beauty - of sharing their decades of experience with storytelling alongside performing music. We have watched young talented musicians sharing the stage with these venerable musicologists.
Jeff Cuny, bass. Jake Schwandt, guitar. RJ Spangler, percussion. Tbone Paxton, trombone and vocals. And whistling - that man can whistle. Check the schedule on the RJ Spangler website to find where you can hear more jazz music, blues, Planet D Nonet.
Appreciation, as always, to Salem-South Lyon District Library for bringing music, art, knowledge to our fortunate community. Watch the SSLDL events calendar for more of this bounty.
Tuesday, February 26, 2019
10th Moose Productions
We were talking about Louise Penny's book that I was rereading - the characters wondered throughout why there was no Muse who shepherded art. 9 Muses. Not one has art in her realm. Wacky Greeks. So we agreed with Penny we need a 10th Muse. As Carol and I were signing off, I wished her a visit from the 10th moose.
Misspoke inspiration.
Then I hunted my drawing of a moose, and posted it on facebook. Because it's funny. I like funny. And I like my drawings.
This moose came to life because of a white water trip. Don't remember which river, but it was wild. I wasn't following instructions well because I was terrified. And my moves were not yet automatic enough to get it right. Don't get it right in white water, and everybody in the boat swims. Through rocks and floater logs and sneers from Neptune. When we emerged untipped on the far far side of the wave chain, the stern paddler launched into instruction mode. Show me a brace. Rudder river left. Where are your feet? I don't know, I said.
Which put me into storytelling The Girl Who Didn't Know Where Her Feet Were. So tall, that... and this moose was born. And a pink flamingo, and I forget what else.
Art is often happy accident. The one painting I won a prize for - and sold on the same night - started out as a piece of paper thrown across the room. My watercolor sky sucked. Walking back in my workshop much later, I saw the paper on the cement floor. Upside down. Ah! As a sky it stunk. As a heaving ocean, it rocked.
I just missed a deadline for the show I've entered for 9 years and won multiple poetry awards in, and one art prize. It's a show about ekphrasis - an ancient Greek (and here are those wacky guys again) argument about which is more aesthetically pleasing: the art or the words in celebration of the art. Entrants submit an original artwork, and an original poem related to the art. For 9 years I entered the limit of 3. 3 paintings. 3 poems. That's 54 pieces of art. I experiment all year on the 6 results that will be entered.
I missed the deadline fully aware that was probably going to be the case. I'm not grieving, so I need to reflect on what's going on in my creative realm. 9 years, hmmm. Time for the 10th moose to step up.
Tuesday, January 29, 2019
Linda Robinson Art Vitae
In recent decades I did textbook illustration, which put bread on table. Tiny loaf. When I could get the assignment, I made book art. My best friend and I made a team - she laid out books, and I did the art. One of our team results was my novel, Chantepleure.
I made all the art on this blog. 708 posts, banner, thumbnails.
My artistic emphasis today is supporting other women entrepreneurs with art. Creating is a joy, and if I have enough to eat and keep a roof over my head, I choose the projects I want to play in. My friend Barb Barton is a gatherer/forager, and I made all her labels for wild foods, in exchange for honey, syrup, wild rice, vinegar. Because I believe in the amazing creative work she does.
My friend Patricia Fero is a psychologist/author and retreat auteur. I am creating her 10th anniversary release of her 2008 book What Happens When Women Wake Up? I create women symbol medallions for her retreat participants. Because I believe in the amazing creative work she does.
Today I still create book art. I am enjoying lessons in watercolor, metalwork and am teaching myself to create in paper clay. Because I believe in the amazing creative work I do.
I do create for money, if the project appeals, and I can manifest the author's vision.
Friday, January 25, 2019
Tuesday, December 11, 2018
Three:Two Story Life
Back the way it was. We're early in the 2nd year without Dad, and Scott still has this verbal tic. My response changes. I know, honey. It is the way it is. I do too. No response, depending on how the day's rolling. Scott is taking prozac now - I imagine he's depressed. The doctor agreed although I am the only reporting individual. She takes my word for it and writes a script. The carers report that he is more responsive (although I still don't know what to do with the one who coaches him to say praise Jesus!) I notice that Scott has stepped into life a bit more. (The fact that he can repeat praise Jesus! is one example.) This return to life shows up in making choices about his environment. He's picking up his dish from the table more often. He makes his bed. Moved his record albums into the living room from his bedroom. Decides when he's going to put on underwear instead of a diaper.
I have to be faster. He picks up his dish, but turns it upside down in the well I put the clean dishes. Then I need to rewash those. He makes his bed over wet sheets. Then the comforter is wet, too. Scott will toss underwear around until he finds the pair he wants to wear, and then I feel like he should be allowed to wear his choice, until the laundry basket is half full with wet underwear. I've had the plumber in 3 times in 60 days because Scott now wants to use toilet paper when he pees. A roll at a time. If he flushes, we're plugged. He doesn't always, so I have to be alert to what's up in the bathroom. Every time. Ten twenty times a day.
My handler with the State DHHS confirmed there's no way to timestamp this. Constant vigilance. No line item. I don't know why I brought it up with her. Looking for some affirmation that this is hard, unrewarding, depressing so that translates to a spreadsheet in the Capricorn corner of my brain.
My therapist used to instruct me to ignore stuff. Just la di da while stepping over scivvies tossed on the floor, toothpicks embedded in the carpet, twist ties strewn around the house. Back then it made some sense. Back the way it was meant arguing with Dad every week about allowing Scott his own life, his own agency, his own quirks. Now I am pushing back at that agency, a quandary for personal growth and peace.
All this stuff is just stuff. Whinging about the mundane. Because that's what it is. It is what it is.
Dad was a support on this three-legged stool of our stories. Scott spent all of his life with Dad in his story. That's a huge loss for him. Scott is finding his way in this new world order without the brain power and memory to find a way through. I question every hour if there is someone or anything that would be a comfort to him.
Dad was the person I could talk with, share his love of sports, my love of art. He was funny when he wasn't grouchy. Just like me. There are entire days when Scott and I have no direct communication; days when he's roaming the corridors of his inner life, and he does not hear me speak.
I'm mad and sorry most of the time. My freedom is curtailed - if I need to leave the house, I either have to take Scott with, or pay for support. I am not as agile, nimble, or interested as I was a year ago. Feeling isolated, I've isolated myself more. Quit the art commission. Stopped painting. Writing, creating, anything. I don't want to get dressed, shower, or rise from the bed to do neither.
I keep thinking this is the day it turns around. This is the day I reengage with life. This is the day my story will take up where it left off. And on that day I'm wrong again.
I am stuck in a groove of being unable to console myself because so many other people have it much harder than I do.
And I still can't cry.
Tuesday, May 22, 2018
A Three Story Life Farewell
It's always too soon, isn't it? Plans for this week changed abruptly Sunday when I heard the intent to bury Dad on Thursday, and I decided that I couldn't not be there. I don't want to wake up one morning down the road and feel bad. As if. Meanwhile, I have to prepare for making my brother share this long road to good-bye.
Our mother died in 1998. Scott won't get out of the car when we visit her grave. 20 years down the long road, he is mostly uncommunicative. I sometimes think he knows Dad has joined Mom, but there is no way to be sure. I told him Dad died. Dementia prevents him from keeping this knowledge. Some days he says it's over repeatedly. Some days he says back the way it was.
My closest friends think I'm crazy to make this trip at all, albeit with no other family in the car for 750 miles round. I have to pack mounds of incontinence supplies. Scott may or may not find closure, and even if he does, it's momentary. I protected him from the physicality of our parents leaving their bodies. That may not have been a good idea. I'm questioning everything. I pretend I can evaluate his needs. I cannot. I am wandering away from identifying my own needs.
All part of life's rich pageant. All grist for the writer's mill. In a life wherein I start writing again, this trip will be the closing scene. As it happens, the day Dad moves to his final place is the anniversary of us moving from A Three Story Life to A Two Story Life. May 26. It's also his brother and best friend's birthday. His brother died in 1998 also.
In that light on that stage, I imagine the items that might go in the grave with Dad's urn. Like ancient deceased expected to need stuff to negotiate the afterlife. I can't find my medicine bag (the collected donated items to help me kick cancer) that has the saxophone reed Dad gave me.
What I need to do is envision what I need to consign to earth. Leave whatever does not serve me on the Island when we get on the ferry. Use the mantra my lovely friend Carol taught me. All will be well.
I'm taking the golf ball.
Wish us peace.
Tuesday, April 10, 2018
New Orleans Jazz and Blues at Salem-South Lyon District Library
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| Donna Olson Introduces |
RJ Spangler and TBone Paxton played Sunday with Matt LoRusso on guitar, Jeff Cuny on bass. Jeff just finished his Master of Music in Jazz at WSU. Bravo!
Storytelling + music + history. Does it get any better than that? RJ is reading a book by Ned Sublette, musicologist that traces the African/Caribbean/Cuban roots of New Orleans music. New Orleans history, back to the Bourbon cousin French/Spanish colonizers.
Go Down to New Orleans. John "TBone" Paxton took the lead on this song to start us swinging. Note on Professor Fess Longhair - there's a bust of him in Tipitina's Bar. Enjoy another cover of Tipitina by Dr. John and Johnny Winter.
The 2nd song in the set Basin Street Blues, written by Spencer Williams in 1928, made famous by Louis Armstrong the same year; this video featuring Jack Teagarden on trombone. RJ mentioned Dr. Michael White, swinging clarinet player. We were treated to an experimental combination, starting as a ballad and switching it up swing. We heard it here first!
Strongly featured in the richness of New Orleans music, and as shared with us by RJ, are producers/players like Dave Bartholomew, who produced Fats Domino. His son Don B. continues the family music dynasty. The Batiste Family. Neville Brothers. Marsalis Family.
Iko Iko is a call and response Mardi Gras Indian tune. Big Chief, Flag Boy - designations of parade positions in a turf war that became a friendly costumed musical rivalry; raising money for charity and to bury the familial departed. Grateful Dead, Dr. John - even Jimmy Fallon and The Roots have covered this fine example of clave rhythm pattern.
Back now to the Come on, Baby, Let The Good Times Roll, Parts 1 and 2. The 1960 recording by Earl King, has Part 1 on the A side, Part 2 on B. Written by Shirley & Lee, their 1956 recording climbed to #20. Jimi Hendrix covered it, as did these others.
Next up was a walking ballad. Do You Know What It Means to Miss New Orleans?
RJ shared more stories: of Guitar Slim in Florida with a young musician he let run the session. Ray Charles was the man's name. Danny Barker, who played banjo and guitar in Harlem in the 20s and 30s, joined Cab Calloway's band, then went back to New Orleans, where he helped rebirth the New Orleans brass band tradition.
For those of you who need to know where the music is playing when it's out of town, Offbeat Magazine has New Orleans on the Road. April 2018 issue cover feature is the French Quarter Fest Issue.
To close the set RJ, Tbone, Jeff and Matt treated us - and we joined in - with Eh, La Bas, traditional New Orleans song. You can play here with the Creole, French, English lyrics.
Standing room only!
This program is funded in part by Michigan Humanities Council, an affiliate of the National Endowment for the Humanities.
Friday, February 9, 2018
Life Goes On Minus One
Meanwhile. I illustrated a remarkable book last year. The author, who is a coach specializing in improving relationships and organizational behavior wrote a book that is extraordinary advice for executives and children.
Look at relationships in nature and understand who you are.
Love yourself and understand that's all you need to have a successful life.
The book is coming soon. The art preview is here.
Saturday, November 18, 2017
Three Story Life: End Game
I didn't remember. Nor did I remember how to shut it off. Three times.
Still not sure if my brother knows our father is dead.
One piece of business done today: I called DTE to change the auto payment from my father's account to mine because I started opening his mail, which feels intrusive, but the letter was dated the day Dad went into the hospital. Halloween. My mother's birthday, begob. Of course, the letter required a 2 day turnaround in their favor. DTE transferred me to Revenue Compliance. I need to send DTE a death certificate. Who pranks someone by switching their auto billing to their own wallet?
I instigated a breakout from Providence Park Hospital for my father. More on this later, but I haven't been 13 years of my life in his care and for his care to have him die in a hospital. The Attending thwarted for ego. Somewhere in my writing future this is the evildoer.
At the end, my siblings stepped up with love. I hope everyone in the house had a moment in the 24 hours Dad was home in bed where he wanted to be.
I was stroking Dad's hands. Keeping him, in his anxiety, from tearing at his oxygen tubing. When holding his hands away wasn't enough I lay on him, my face in his neck. He calmed. Minutes passed. I'm a pain in the ass he said. Well then, I learned from the best I said.
Scott had no moment. He was in the next room, witnessing the mayhem attached to a death: Dad yelling pee and drink, and when he figured we weren't fast enough, using his strobe flashlight to get attention.
I can't escape wondering what I could have done to make this easier on my brother. He lost his grandmother in 1987. She was his best buddy, finest champion, Yahtzee partner. My mother insisted on her being at their house. Did they handle his grief well? It took our cousin from England to open my eyes in inquiring whether we'd dealt with Scott's loss. Scott then watched his mother at home in hospice care; objected to the police in his mother's bedroom when she died. And now this. The three most important people in his life died in his presence.
When everyone had left the house, Scott and I had dinner. I didn't know what to say to him, what he'd take in, what what. Then I held his face in my hands and I said, "We lost our Dad today. I am sorry for both of us. I want you to know you are loved, we are loved, and you are not alone. Do you understand? We will be okay."
And he said. Okay.
Tonight there's just me and Jack Honey and a black hole.
In the morning there's our life as it is now. Me looking at him for guidance, him looking at me.
Friday, November 3, 2017
Keep Me Posted
Dark Humor.
Tonight my father is in the hospital, next stay in a month, with a partially collapsed lung. He's 90. We're in for the hospital stays until he passes because he has lovely insurance.
My brother who has Alzheimer's has Medicare, and his infection was treated today as well. I set him in the shower tonight and he came back out, said "there's somebody in there." That's a long sentence for him, and I wonder what he saw. And then wondered if I needed to call 911 for me.
My father calls with what I need to bring to the hospital. One of those things is hearing aid batteries, so I can ask when the list starts "did you call FedEx?" because 1) he never listens to me and 2) he has no working hearing aid batteries. These calls can begin as early as 7 because he hasn't slept so everyone else in the known universe is awake.
I'm happy to be joined in this we all die thing by wonderful people like Caitlin Doughty.
And in the truly fine way to move with much loved Leonard Cohen.
And in the blooming interim there's the true weird and wonderful. This is the intersectionality I live in. Between life and death there's old age, infirmity and diminishing capability for us all.
The Three Story Life posts are going to be a play. I'm using NaNoWriMo to be well on my way, and I hope to be at Ragdale to finish. Or perhaps it won't be finished.
Keep me posted is what my family texts/says. Maybe they all need hearing aid batteries. Maybe I don't know how to ask for help.
























